FAMILY VOICES Resources
FAMILY VOICES is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.
Supporting Black Autistic Girls in the Transition to Adult Health Care - Providers Guide
Understanding Black Family Relationships - for Health Care Providers
Engaging and Supporting Black Autistic Girls and Their Care Partners in the Health Care Setting
View/download the recommendations
Preparing for a Health Care Visit with Black Autistic Girls - for Providers
Supporting Black Autistic Girls in the Transition to Adult Health Care - Guide for Self Advocates and Families
Preparing for a Health Care Visit - Guide for Self Advocates and Families
Working with a Care Partner - Guide for Self Advocates
Stepping in as a Care Partner - Guide for Families
Finding the Right Fit with Your Health Care Provider - Guide for Self Advocates
Working with a Care Partner and Stepping in as a Care Partner - Video for Self Advocates and Families
Preparing for a Health Care Visit - Video for Self Advocates and Families
Center for Transition to Adult Health Care for Youth with Disabilities, funded by Administration for Community Living
Meeting the Health Care Transition Needs of Youth with Intellectual and Developmental Disabilities in the Juvenile Justice System
Supporting the Move to Adult Health Care for Youth with IDD in the Juvenile Justice System
View/download the recommendations
Moving to Adult Health Care for Youth with IDD in the Juvenile Justice System
View/download the recommendations in English and Spanish
Recommendations for Juvenile Justice Facilities on Working with Youth with IDD
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Pathways and Pitfalls: Helping Youth with IDD in the Juvenile Justice System Move to Adult Health Care
https://www.youtube.com/watch?v=obxcOfYYsN0&t=18s